Well after several attempts with the wonder stuff "Press and Seal" that my good friend Paula sent me, I at last felt confident enough to slide down far enough into the bath water to soak my pits.
Lorna: "aghhhh...don't do that! you'll get your line wet!"
Me: I've got to....... it's been 5 weeks!
Lorna: It'll only be a couple more weeks..... 2 months at best!
It will be vintage Cheddar at this rate.
Monday, 6 December 2010
Nothing like a Dame
Just when I'd collected up my charger, earphones, earplugs, laptop, bright green jim-jams, 341 pairs of pants and a copy of Woman's Weekly,( don't tell Victoria Wood ) my holiday gets put back cause there is congestion on the approach.
I rang ward 5 at the allotted time this morning of 10am only to be told that there are no beds available.... well might be at 12pm after holiday rep has been round and sent a few home.
Most likely to be sent home are the ladies apparently, which doesn't help me cause I'm a man. I suggested to the Rep on the phone that I have a mean Tina Turner outfit and that if I did my special walk, the ladies would be confused enough to not notice what I was, especially if they gave me the holiday cocktail quickly to get rid of the whiskers. I'm British, I like queues. Not my favourite hol destination anyway, not enough beach and too much salty water.
"Toni, will you stop looking at me like that!" I'll go and leave her and mommy in peace when I'm ready and not when the dog is sat there looking smug!
Oh well, looks like a few more days of anticipation, angst and alcohol !
I rang ward 5 at the allotted time this morning of 10am only to be told that there are no beds available.... well might be at 12pm after holiday rep has been round and sent a few home.
Most likely to be sent home are the ladies apparently, which doesn't help me cause I'm a man. I suggested to the Rep on the phone that I have a mean Tina Turner outfit and that if I did my special walk, the ladies would be confused enough to not notice what I was, especially if they gave me the holiday cocktail quickly to get rid of the whiskers. I'm British, I like queues. Not my favourite hol destination anyway, not enough beach and too much salty water.
"Toni, will you stop looking at me like that!" I'll go and leave her and mommy in peace when I'm ready and not when the dog is sat there looking smug!
Oh well, looks like a few more days of anticipation, angst and alcohol !
Tuesday, 16 November 2010
Muppet Babies
Well it's been a long nine months for us, but finally labour has started and Lorna and I are looking forward to the imminent birth. With a bit of help from medical science, man is able to create new life. Yes in this case "MAN GIVES BIRTH". Now before you all start knitting, bootees, hats and little jumpers, I'm not talking about the pitter-patter of tiny feet, more the whooshing of millions of tiny stem cells. I have to say that given the pain I'm in,(Co-Codamol 500/30mg x2 has little effect) it had better be worth it!
All the pain, but none of the fun though. Lots of throbbing but no pleasure. I'm sure you girls have probably said that a few times over the years, and it is probably like meat and two veg to you all, but I'm really worried that when I go for my line care on my expertly fitted Central Line on Wednesday, the nurses are going to ask me to PUSH!
All the pain, but none of the fun though. Lots of throbbing but no pleasure. I'm sure you girls have probably said that a few times over the years, and it is probably like meat and two veg to you all, but I'm really worried that when I go for my line care on my expertly fitted Central Line on Wednesday, the nurses are going to ask me to PUSH!
It is the dreaded G-CSE....ERM..... G-CSF sorry, (although to want it, you do need your head EXAMINING.) On Sunday I started the 4-a-day injections of Neupogen that will hopefully encourage the birth of 6 million or so baby stem cells that will be used to reboot me after the mustard gas attack planned at Cancer Operational Headquarters, QE., Birmingham on December 6th.
The pain of this war on Myeloma has really come to the fore this week. My bones are throbbin in time to my heartbeat," BOOM BOOM shake ya bones" for those who teen'd in the 70's. Child of the 50's,60's,70's,80's,90's and naughties is what I am. Lorna says I've never grown up. I reckon those stem cells will be more responsible than me, given a week or two. I'm halfway through my course of injections so there will soon be an extra shelf in the fridge again for the cheese to mature on. Lorna wanted it for wine, but I've told her there is more than enough whinin already.
The pain of this war on Myeloma has really come to the fore this week. My bones are throbbin in time to my heartbeat," BOOM BOOM shake ya bones" for those who teen'd in the 70's. Child of the 50's,60's,70's,80's,90's and naughties is what I am. Lorna says I've never grown up. I reckon those stem cells will be more responsible than me, given a week or two. I'm halfway through my course of injections so there will soon be an extra shelf in the fridge again for the cheese to mature on. Lorna wanted it for wine, but I've told her there is more than enough whinin already.
Monday, 27 September 2010
Myeloma Calendar attempt
Last week I joined the Under 50's Myeloma site........ sssssshhhhhhhh....... Yes I know I'm older but they don't seem to mind! Lovely bunch of peeps and I was made to feel very welcome.
I was perusing the comments and came across one where my new friends were saying a "calendar would be a good fundraiser"............... so, as I was in a particularly helpful mood that day......... I've sent an e-mail to Gok Wan @ Channel 4 proposing a "Moobs and Boobs" calendar producing programme, aka calendar girls. Now knowing how "not backwards in coming forwards" our followers are, here is your opportunity to get in on the act and nab a month before they all go. So far, January, April, May, September and December are spoken for possibly, but that still leaves 7 months to fill as we speak.
Of course, we still have to wait and see if Gok can help, but if not then I will pester some other poor celeb.
By the way, has anyone got 2 tassels and a fig leaf?
I was perusing the comments and came across one where my new friends were saying a "calendar would be a good fundraiser"............... so, as I was in a particularly helpful mood that day......... I've sent an e-mail to Gok Wan @ Channel 4 proposing a "Moobs and Boobs" calendar producing programme, aka calendar girls. Now knowing how "not backwards in coming forwards" our followers are, here is your opportunity to get in on the act and nab a month before they all go. So far, January, April, May, September and December are spoken for possibly, but that still leaves 7 months to fill as we speak.
Of course, we still have to wait and see if Gok can help, but if not then I will pester some other poor celeb.
By the way, has anyone got 2 tassels and a fig leaf?
Tuesday, 3 August 2010
Became Absorbed
Was just lookin for shock absorbers for the rear of my car....... and the search came up with this.......Shock absorbers
Wednesday, 28 July 2010
Sponge Mike, Square One.
Well folks, it's back to square one xx.
Went to the Q.E. in Birmingham yesterday to an appointment with P.M. and B.C. (the time twins?). It was an appointment I thought, that was to bring the transplant forward a month or so because I was doing "so well". BANG! Jaw hit the floor. Para-proteins back up to 27 ish,( where they were in December, just before my official diagnosis ) and SCT now postponed till Christmas time.
So it is back to the bigger glass of water and the larger needle and the sack of tablets, ( including 10 Dex four times a week ;D), to get rid of the bone pain that has re-emerged and to make sure I am still here when the SCT collection starts.
Lorna is my strength and you and all your support are enough to help me get through this.
ta, Mike xxxxxxxxxxxxxxx
Went to the Q.E. in Birmingham yesterday to an appointment with P.M. and B.C. (the time twins?). It was an appointment I thought, that was to bring the transplant forward a month or so because I was doing "so well". BANG! Jaw hit the floor. Para-proteins back up to 27 ish,( where they were in December, just before my official diagnosis ) and SCT now postponed till Christmas time.
So it is back to the bigger glass of water and the larger needle and the sack of tablets, ( including 10 Dex four times a week ;D), to get rid of the bone pain that has re-emerged and to make sure I am still here when the SCT collection starts.
Lorna is my strength and you and all your support are enough to help me get through this.
ta, Mike xxxxxxxxxxxxxxx
Tuesday, 6 July 2010
Myeloma Brain, or Vanity?
Wierdest thing today. Was walking through Schuh in Bullring Shopping Centre with Lorna this morning, looking at all the best in proper shoes, when I looked, as you do, into one of the mirrors in the fixtures in the middle of the shop. Then I looked again and then even HARDER. "Where am I!" I whispered to myself. " I've disappeared, I can't see myself". Squinting my eyes and moving really CLOSE to the mirror....... OOPS! Why is that woman with the cleavage giving me a look of amazement? NOT a mirror....it's NOT a mirror!
Mike.
Mike.
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