Well after several attempts with the wonder stuff "Press and Seal" that my good friend Paula sent me, I at last felt confident enough to slide down far enough into the bath water to soak my pits.
Lorna: "aghhhh...don't do that! you'll get your line wet!"
Me: I've got to....... it's been 5 weeks!
Lorna: It'll only be a couple more weeks..... 2 months at best!
It will be vintage Cheddar at this rate.
Monday, 6 December 2010
Nothing like a Dame
I rang ward 5 at the allotted time this morning of 10am only to be told that there are no beds available.... well might be at 12pm after holiday rep has been round and sent a few home.
Most likely to be sent home are the ladies apparently, which doesn't help me cause I'm a man. I suggested to the Rep on the phone that I have a mean Tina Turner outfit and that if I did my special walk, the ladies would be confused enough to not notice what I was, especially if they gave me the holiday cocktail quickly to get rid of the whiskers. I'm British, I like queues. Not my favourite hol destination anyway, not enough beach and too much salty water.
"Toni, will you stop looking at me like that!" I'll go and leave her and mommy in peace when I'm ready and not when the dog is sat there looking smug!
Oh well, looks like a few more days of anticipation, angst and alcohol !
Tuesday, 16 November 2010
Muppet Babies
All the pain, but none of the fun though. Lots of throbbing but no pleasure. I'm sure you girls have probably said that a few times over the years, and it is probably like meat and two veg to you all, but I'm really worried that when I go for my line care on my expertly fitted Central Line on Wednesday, the nurses are going to ask me to PUSH!
It is the dreaded G-CSE....ERM..... G-CSF sorry, (although to want it, you do need your head EXAMINING.) On Sunday I started the 4-a-day injections of Neupogen that will hopefully encourage the birth of 6 million or so baby stem cells that will be used to reboot me after the mustard gas attack planned at Cancer Operational Headquarters, QE., Birmingham on December 6th.
The pain of this war on Myeloma has really come to the fore this week. My bones are throbbin in time to my heartbeat," BOOM BOOM shake ya bones" for those who teen'd in the 70's. Child of the 50's,60's,70's,80's,90's and naughties is what I am. Lorna says I've never grown up. I reckon those stem cells will be more responsible than me, given a week or two. I'm halfway through my course of injections so there will soon be an extra shelf in the fridge again for the cheese to mature on. Lorna wanted it for wine, but I've told her there is more than enough whinin already.
The pain of this war on Myeloma has really come to the fore this week. My bones are throbbin in time to my heartbeat," BOOM BOOM shake ya bones" for those who teen'd in the 70's. Child of the 50's,60's,70's,80's,90's and naughties is what I am. Lorna says I've never grown up. I reckon those stem cells will be more responsible than me, given a week or two. I'm halfway through my course of injections so there will soon be an extra shelf in the fridge again for the cheese to mature on. Lorna wanted it for wine, but I've told her there is more than enough whinin already.
Monday, 27 September 2010
Myeloma Calendar attempt
Last week I joined the Under 50's Myeloma site........ sssssshhhhhhhh....... Yes I know I'm older but they don't seem to mind! Lovely bunch of peeps and I was made to feel very welcome.
I was perusing the comments and came across one where my new friends were saying a "calendar would be a good fundraiser"............... so, as I was in a particularly helpful mood that day......... I've sent an e-mail to Gok Wan @ Channel 4 proposing a "Moobs and Boobs" calendar producing programme, aka calendar girls. Now knowing how "not backwards in coming forwards" our followers are, here is your opportunity to get in on the act and nab a month before they all go. So far, January, April, May, September and December are spoken for possibly, but that still leaves 7 months to fill as we speak.
Of course, we still have to wait and see if Gok can help, but if not then I will pester some other poor celeb.
By the way, has anyone got 2 tassels and a fig leaf?
I was perusing the comments and came across one where my new friends were saying a "calendar would be a good fundraiser"............... so, as I was in a particularly helpful mood that day......... I've sent an e-mail to Gok Wan @ Channel 4 proposing a "Moobs and Boobs" calendar producing programme, aka calendar girls. Now knowing how "not backwards in coming forwards" our followers are, here is your opportunity to get in on the act and nab a month before they all go. So far, January, April, May, September and December are spoken for possibly, but that still leaves 7 months to fill as we speak.
Of course, we still have to wait and see if Gok can help, but if not then I will pester some other poor celeb.
By the way, has anyone got 2 tassels and a fig leaf?
Tuesday, 3 August 2010
Became Absorbed
Was just lookin for shock absorbers for the rear of my car....... and the search came up with this.......Shock absorbers
Wednesday, 28 July 2010
Sponge Mike, Square One.
Well folks, it's back to square one xx.
Went to the Q.E. in Birmingham yesterday to an appointment with P.M. and B.C. (the time twins?). It was an appointment I thought, that was to bring the transplant forward a month or so because I was doing "so well". BANG! Jaw hit the floor. Para-proteins back up to 27 ish,( where they were in December, just before my official diagnosis ) and SCT now postponed till Christmas time.
So it is back to the bigger glass of water and the larger needle and the sack of tablets, ( including 10 Dex four times a week ;D), to get rid of the bone pain that has re-emerged and to make sure I am still here when the SCT collection starts.
Lorna is my strength and you and all your support are enough to help me get through this.
ta, Mike xxxxxxxxxxxxxxx
Went to the Q.E. in Birmingham yesterday to an appointment with P.M. and B.C. (the time twins?). It was an appointment I thought, that was to bring the transplant forward a month or so because I was doing "so well". BANG! Jaw hit the floor. Para-proteins back up to 27 ish,( where they were in December, just before my official diagnosis ) and SCT now postponed till Christmas time.
So it is back to the bigger glass of water and the larger needle and the sack of tablets, ( including 10 Dex four times a week ;D), to get rid of the bone pain that has re-emerged and to make sure I am still here when the SCT collection starts.
Lorna is my strength and you and all your support are enough to help me get through this.
ta, Mike xxxxxxxxxxxxxxx
Tuesday, 6 July 2010
Myeloma Brain, or Vanity?
Wierdest thing today. Was walking through Schuh in Bullring Shopping Centre with Lorna this morning, looking at all the best in proper shoes, when I looked, as you do, into one of the mirrors in the fixtures in the middle of the shop. Then I looked again and then even HARDER. "Where am I!" I whispered to myself. " I've disappeared, I can't see myself". Squinting my eyes and moving really CLOSE to the mirror....... OOPS! Why is that woman with the cleavage giving me a look of amazement? NOT a mirror....it's NOT a mirror!
Mike.
Mike.
Monday, 14 June 2010
Breakdowns as a child
Was in the garage last night trying to find the jigsaw to cut out the sink hole in the new kitchen surface, when I found an old diary that i'd been awarded by my junior school at christmas of 1966. Nostalgia took over at this point, as I fondly remember this diary was a prize for baking and icing the best christmas cake in my class. You are probably confused about the post title at this point, but all is about to become clear.
I was reminded as I perused the first few pages, that apart from the reminders for swimming, scouts and that the school broadcasts were to commence on Monday 17th January with "Singing Together", that my father's car was always breaking down or he was helping someone who had. Wednesday 19th January 1966, "Towed a car to Kinson Motors with dad and his friend Paul". Later that week......" Got late for schoo-l(the L went onto the next line)becose I was helping dad push the car but it still didn't start". So you see, my life as a child was one breakdown after another. Most of the kids today don't know they've lived in comparison, and all of this because I need a new sink.
Oh, and Lorna is being released from hospital today.....Toni wonders if mommy will want me to take her a loose skirt and some socks to come home in.....
I was reminded as I perused the first few pages, that apart from the reminders for swimming, scouts and that the school broadcasts were to commence on Monday 17th January with "Singing Together", that my father's car was always breaking down or he was helping someone who had. Wednesday 19th January 1966, "Towed a car to Kinson Motors with dad and his friend Paul". Later that week......" Got late for schoo-l(the L went onto the next line)becose I was helping dad push the car but it still didn't start". So you see, my life as a child was one breakdown after another. Most of the kids today don't know they've lived in comparison, and all of this because I need a new sink.
Oh, and Lorna is being released from hospital today.....Toni wonders if mommy will want me to take her a loose skirt and some socks to come home in.....
Thursday, 10 June 2010
Little op, BIG OP.
Lonely after one morning, silly I know, but missing my Lorna while she has her "little" massive operation.
We've been through a lot recently there is no denying, so as extras go, this one was not the most welcome, although necessary addition to the health itinerary.
Lorna's Doc promised her a "new woman" tag...... I I already love the old one, but hey, this is progress, maybe the new one will be able to spell as well as add up....lol.
Making my way to the hospital in the disabled car that has it's own space, although maybe it is supposed to be because I'M disabled and not because the clutch has gone, to take my visiting rights. Makes a change from the other way around. Must sort out the grapes from the fridge, got to have something to munch while i'm sat there.
I do hope Lorna is ok. Not had to worry like this in a long time. I'm sure she will be.
Mike.
We've been through a lot recently there is no denying, so as extras go, this one was not the most welcome, although necessary addition to the health itinerary.
Lorna's Doc promised her a "new woman" tag...... I I already love the old one, but hey, this is progress, maybe the new one will be able to spell as well as add up....lol.
Making my way to the hospital in the disabled car that has it's own space, although maybe it is supposed to be because I'M disabled and not because the clutch has gone, to take my visiting rights. Makes a change from the other way around. Must sort out the grapes from the fridge, got to have something to munch while i'm sat there.
I do hope Lorna is ok. Not had to worry like this in a long time. I'm sure she will be.
Mike.
Saturday, 15 May 2010
Rising the dead to the world
Please don't get jealous Toni, but I took the drip stand for a walk today.
I felt awful yesterday with headache, but got a bit of sleep last night and am able to drink fluids a bit again after iv antibiotics.
Thanks for all the prayers you lot... very heartening xxxx.
I'll be out to hug you soon Lorna, and help with the shopping.
Micky.
Update by Lorna:
The improvement was short-lived. By the time I visited, Mike was in a terrible state again and the antibiotics have taken their toll.
I felt awful yesterday with headache, but got a bit of sleep last night and am able to drink fluids a bit again after iv antibiotics.
Thanks for all the prayers you lot... very heartening xxxx.
I'll be out to hug you soon Lorna, and help with the shopping.
Micky.
Update by Lorna:
The improvement was short-lived. By the time I visited, Mike was in a terrible state again and the antibiotics have taken their toll.
Thursday, 25 March 2010
We are not alone!!
We had a lovely chat with the super efficient GD today, she's a PROPER old school nurse (so mind out chaps). It would appear that she shares our sense of humour...... lol. (I hasten to add she isn't actually by any means old.) I asked her for directions to the parking control centre, to which she replied:
"It's in the same building as the mortuary, why the burning desire to go there?"
"I'm dead keen to get my concessionary pass." (Boom boom)
Velcade without the saline bag, GD was busy........ painful and went a funny colour. lol
"It's in the same building as the mortuary, why the burning desire to go there?"
"I'm dead keen to get my concessionary pass." (Boom boom)
Velcade without the saline bag, GD was busy........ painful and went a funny colour. lol
Wednesday, 24 March 2010
Booking made easy
Forget Thomas Cook.....they have no idea how to make easy, booking a break away from home ,when compared to Dr. PM at the QE. Perfectly explained in understandable terms, itinerary to die for....pardon the pun.
In other words I've got my SCT lined up for November 2010 and am feeling better knowing what is planned when. just gotta get on with the prep to get there in good fettle!
Feeling homesick already. Don't fancy weeks in bed away from Lorna every night, but if it gives us a life afterwards, then it will be worth it definitely.
In other words I've got my SCT lined up for November 2010 and am feeling better knowing what is planned when. just gotta get on with the prep to get there in good fettle!
Feeling homesick already. Don't fancy weeks in bed away from Lorna every night, but if it gives us a life afterwards, then it will be worth it definitely.
Does anyone have middle of the night Dex dreams, waking up laughing out loud at the thought of their consultant bombing out of the hospital car park in a Dodge Viper (flames painted down the sides), wearing combats and an open faced white helmet with the chin strap done up...... no?......oh well. 
New fridge or faze the kids, no contest....lolxxxx
Monday, 15 March 2010
" If I were a rich man"
Oops, wrong movie, that's Fiddler On The Roof.
But then again I'm on my dex again so maybe relevant....lol.
Today at the day case ward for my Velcade was uplifting. Not only was it on the second floor, I learned that the treatment only takes 3 seconds once they have set up the cannula and best of all I overheard a nurse say " these must be the wrong notes...he's never 55 yrs old!" She took loads of persuading over a good few seconds before she believed the Sister....lol.
I can feel a trip to Thorntons coming on before my next appointment.
On a more serious note, I'm relieved that finally I'm on treatment again and I'm very thankful that the staff have assured me they will do their level best to get me out and back to work quickly whenever they can.....bless them xx.
I got to see Dr.SB again unexpectedly because no consent form had been done for the Velcade, and apparently they can't kill me without permission (and I am quoting the Matron here). He appeared pleased to see me and asked how the haematuria was, (notice he used the technical term when he spoke to me...polishing nails on lapel.....lol), and then nearly fell off his chair laughing when I quoted an article that had put my mind at rest, that Lorna had found on the trusty Internet. It was in relation to the blood in urine problem, but was written by a VET. I tried to explain that we are all animals, but he just kept laughing for some reason.
Mike .
But then again I'm on my dex again so maybe relevant....lol.
Today at the day case ward for my Velcade was uplifting. Not only was it on the second floor, I learned that the treatment only takes 3 seconds once they have set up the cannula and best of all I overheard a nurse say " these must be the wrong notes...he's never 55 yrs old!" She took loads of persuading over a good few seconds before she believed the Sister....lol.
I can feel a trip to Thorntons coming on before my next appointment.
On a more serious note, I'm relieved that finally I'm on treatment again and I'm very thankful that the staff have assured me they will do their level best to get me out and back to work quickly whenever they can.....bless them xx.
I got to see Dr.SB again unexpectedly because no consent form had been done for the Velcade, and apparently they can't kill me without permission (and I am quoting the Matron here). He appeared pleased to see me and asked how the haematuria was, (notice he used the technical term when he spoke to me...polishing nails on lapel.....lol), and then nearly fell off his chair laughing when I quoted an article that had put my mind at rest, that Lorna had found on the trusty Internet. It was in relation to the blood in urine problem, but was written by a VET. I tried to explain that we are all animals, but he just kept laughing for some reason.
Mike .
Saturday, 13 March 2010
Rock and Diamond
Hi everyone, just have to say I think it is easier to be the MM sufferer than ever to be a carer, there are so many worries and so much work for carers whereas as a sufferer I only have to take it as it comes, (no choice...lol).
The reason I'm writing this is because I want the whole world to know what a ROCK and a DIAMOND my lovely Lorna is. She is completely unselfish and totally committed to being my salvation, and only occasionally shouts at me when I'm TOTALLY unreasonable.
Now I'm cryin but wot the hell.....I LOVE HER VERY MUCH xxxxxxxxx.
Mike.
The reason I'm writing this is because I want the whole world to know what a ROCK and a DIAMOND my lovely Lorna is. She is completely unselfish and totally committed to being my salvation, and only occasionally shouts at me when I'm TOTALLY unreasonable.
Now I'm cryin but wot the hell.....I LOVE HER VERY MUCH xxxxxxxxx.
Mike.
Friday, 26 February 2010
Pill-er of the community
Cor! Entering uncharted territory for the first time tomorrow...... starting my first course of keemoterapy begorra begeesus....... watch this space.... could take a while cause I've got 35 pills to take on day 1/8/15/22. Good job I'm not a battleship, I'd SINK.
The staff at New Cross Hospital Wolverhampton deserve a medal for the way they looked after me today....amazingly wonderful.....thank you people xxxxx.
Mike.
The staff at New Cross Hospital Wolverhampton deserve a medal for the way they looked after me today....amazingly wonderful.....thank you people xxxxx.
Mike.
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