Well I'm sitting here all alone contemplating life, the universe and everything. I've come to several conclusions but I'm not sure that most of you would want to hear them.
Life is so fluid. I'd sort of noticed before but the last fortnight has been like watching the sea come in and out. The first week we were relieved by the care Mike received and privately celebrated how safe we felt. The second week and we have wondered how different things might have been if we lived further North or further South. Or I guess if we had known more and asked for that second opinion elsewhere. In essence the second week has landed us with a doctor who for some reason cannot abide Mike. I haven't imagined it all. I heard what was said by the consultant and I then saw how she deliberately disregarded his decision.
What would Mike's state of health be if he had been given his SCT in Liverpool, or London, or Nottingham, if he'd had a room to himself, had a team of doctors who only wanted the best and will the questions continue as we find out the results of the last year's treatment?
I have come to one very important conclusion. I'm proud of the blog Mike and I have written. It hasn't always been pretty, but it has told it how it is sometimes. For patients and carers there are rough times on the journey and if we don't accept that, we can't move forward to pastures new, where we can sit quietly and hopefully not hear the ticking.
The Hebrew Letters Experience
1 week ago