Does anyone else have days where you get out of bed grumpy and angry at the world?
That's exactly how I feel today. Now I know that mm is far from being a picnic, but right now I'm completely p***** off that having waited a month to start treatment, Mike didn't even manage a week. Now we have to use his day off next week to go and see the consultant Dr SB. But why? Mike hasn't been given an appointment with the urologist yet and as the appointment with Dr SB is Monday afternoon, it doesn't seem likely he will have. So if he won't (or doesn't think it wise to, ) continue treatment without further investigation, why drag us in?
I was reading feresaknit's blog earlier and Tim's Wife (all this code name stuff is so exciting) suggested that us MM women be we carers or sufferers need a holiday, damn right we do. I don't know if it is just me, or whether other women have the same experience, but when I get PMS or just generally annoyed, I let rip, no holding back. When I'm done and the rage has past I am quite capable of looking back and saying "yes I was in a bad mood darling and I shouldn't have taken it out on you." It seems men do not have quite the same reaction "I wasn't in a bad mood, nothing to do with the drugs." I try to be patient and understand, but my patience is just about used up with all the disturbed nights, hospital trips and worrying.
And to top it all, I read on The Myeloma Beacon an article on "The Impact Of Age At Diagnosis On Myeloma Patient Survival." I suggest no-one else does it's very depressing.
4 days ago