Social media is a wonderful thing, (well some of the time.) It connects us with other people from across the world, even if sometimes there is the time difference to cope with (I usually end up posting "Happy Birthday" wishes to Dave and Lynn when it is already the next day!) We've made some good friends and been able to share experiences of life with all our Myeloma Buddies. Some times it is a reminder though of one's luck, be it good or bad. There are those who have been off treatment for five, seven, even ten years or more. There are those who have been granted just a few months, or as is the case with Emma J. no drug free time at all. It is hard to feel sorry for yourself knowing that there are others far worse off, but still there is that little voice that says "no fair" when the consultant tells you the numbers are creeping back up. Less than 2, 3, now 5. Mike sees Dr. B. again on the 14th of this month. Until then we'll have to assume we're in the middle for the diddle. *Middle for diddle: The throw of a dart to decide who has first throw in a game darts, nearest the bullseye has first throw.
I still find it hard to believe that Paula is no longer around to poke fun at us, entertain us and comfort us. We still miss her terribly, but we have reached a stage where thoughts of Paula bring more smiles than tears, although writing this has got me all teared up. We often ask each other "I wonder what Paula would have to say" when we see something funny or think "I must tell Paula" only to realise we can't. Only a month ago I pointed out to Mike that despite three attempts, I could not get my courgette seeds to grow and that I reckoned Paula was interfering as she hated them. Since I pointed it out she obviously felt guilty and I now have several healthy plants. Thanks Paula. I looked back at all the wonderful things that were said on Facebook and her blog as news of her death filtered through. The impact she had and I think still has, was tremendous. We are all better for having shared even a small part of her with Bernard and of course Buddy. Paula might have been small, but she had the heart of a lion and more compassion than there is water on Earth. We all miss you Paula.
Photograph from the remembrance book at Paula's funeral
Yesterday morning at 3:12 I became anneanne (Turkish for maternal grandmother, my preferred title) to Madisyn Lillie, She wasn't due until 9th May, but my daughter developed pre-eclampsia and on Saturday morning they started the induction procedure. Eventually in the early hours of Monday morning she decided enough was enough and a c section was performed. Madisyn was born weighing a very respectable 7lb 3oz, not bad for a baby nearly 3 weeks premature. I got to visit this afternoon, but I wasn't allowed to take photos. The atmosphere was chilly at best, my daughter and boyfriend having made it clear that they will not be bringing her to my house anytime soon. Today may have been the only chance I get to hold my granddaughter, I may not see her for months or even years, at least I have my other children to keep me posted and supply secret photos.
Hi again everybody, long time no see. I have been away from the blog hoping to forget about Myeloma for a bit, and while I was away I even jumped off a bridge trying to get away from it.......... well trying to raise some funds for all of us to get away from it at least.....lol. x
While away I have had the pleasure of meeting and hopefully helping a couple of newbies, Ruby, and Jose and wife Salet to gain knowledge of this dreadful Myeloma. I say pleasure because they are lovely lovely people, not because I need the sport if you know what I mean.
After having waxed lyrical for the last 3 years about how I am so lucky that my Myeloma is on hold and I can continue to live as a swashbuckling swashbuckler and save to travel to see friends, I am now in the rather dubious position where my Consultant Dr. B told my at 4.40 p.m. on the 24th February 2014 (it would have been 4 p.m. but he was running late so I got a stay) that my paraproteins have popped up at 3 instead of where they were for the last 3 yrs, "less than 2 so undetectable". All I can say is "shit", pardon the language.
Worse than this is the fact that Dr. B's words obviously went clean over my head, because when he asked me if I was happy to stick to my 3 monthly appointments, I inexplicably said YES and did not give it another thought until waking at 3 a.m. this morning and panicking that I ought have demanded daily appointments as my right,,,in fact hourly ones or even minute by minute.
No seriously, if my favourite consultant says 3 months then I will share his optimism.......gladly:-)
Did you know it is not to late to still donate to Mike's Just Giving page? OK, I know I am like a broken record, but it is in a good cause. If you needed any further inspiration just watch the video of his drop.