Mike had an appointment with his consultant this morning. Unfortunately he had arranged for a builder to come round, forgetting he had the appointment, so I had to stay at home. Mike was told his pp are down to 9 which is good news and that he is to have his central line put in on Monday almost 5 weeks before the SCT, which I think is really bad news. So at the risk of making Mike angry I am going to have a real rant and ask the question "How do you manage to be intimate with someone who has a central line in?" I don't care that it's there to make the collection on 18th November easier, I've got to sleep next to it for three weeks. I know Mike has no choice, I'm not mad with him, but even so I am really angry with the world, because I know that there are other hospitals that leave it much later. I'm scared that it'll get infected like Wallace's did, I don't care that they say that won't happen to Mike.
Well Mike has reached the limits of Velcade, 8 cycles down, no more to go. Even if he wanted more, he's not allowed. Tomorrow it's off to the QE for those final arrangements.
Now as you all know already Mike isn't backward in coming forward and so when he was asked during his fruit phase, what he'd be doing when it was all over (the chemo that is, not when he dies, silly people!), he promised the nurses something special. Today he fulfilled that promise. Most patients buy a nice card and a box of chocolates, or maybe a nice bunch of flowers, not Mike. There is no easy way to say this so I'll just have to show you all.
Yep he dressed up as Tina Turner and sang his own version of "The Best" to Liz and Donna, oh and various other members of staff and patients. (Video to follow when edited. )
I don't know what it feels like to have myeloma, I can only speak as a carer.
We are approaching what feels like the final leg of our first marathon to beat myeloma. I hope it is the only one we have to endure, but the chances of that are very slim. Mike has his last Velcade infusion next Monday and then it's off to the QE to make all those delightful final arrangements ready for his SCT. Those of you who have been there, done that, got the T-shirt and have already written the book, don't need me to list the battery of tests, by the time they've finished this round, there will be a whole shelf of tests results on Mike.
Personally I've never been much of a runner. I can't sprint and my long distance running has never been much cop either. I just hope I can finish this race.