Just a quick post, for all our adoring fans out there. I'm not sure if anyone else has had this, but after posting our tale of appointment woe yesterday on the myeloma forum, one lady said "Your husband will have had the disease for a long time, without being aware of it." (Why do people assume we are married when I consistently say partner?) Would anyone find that particular phrase 'helpful'? All it did was make me angry at myself, Mike, the doctors and the world! The idea that I might have been slave driving him to dig the garden while he was ill last summer is not nice. (I didn't actually use the whip, just held it for effect!)
If I'd known I was ill, I'd have kept digging to save time on the funeral. -Mike
So if in the future, you meet someone who is caring for or has myeloma, don't point out that they have been falling apart for years, you might upset someone!
5 days ago