Tuesday, 25 February 2014

Over my head be it!

Hi again everybody, long time no see. I have been away from the blog hoping to forget about Myeloma for a bit, and while I was away I even jumped off a bridge trying to get away from it.......... well trying to raise some funds for all of us to get away from it at least.....lol. x
While away I have had the pleasure of meeting and hopefully helping a couple of newbies, Ruby, and Jose and wife Salet to gain knowledge of this dreadful Myeloma. I say pleasure because they are lovely lovely people, not because I need the sport if you know what I mean. 

After having waxed lyrical for the last 3 years about how I am so lucky that my Myeloma is on hold and I can continue to live as a swashbuckling swashbuckler and save to travel to see friends, I am now in the rather dubious position where my Consultant Dr. B told my at 4.40 p.m.  on the 24th February 2014 (it would have been 4 p.m. but he was running late so I got a stay) that my paraproteins have popped up at 3 instead of where they were for the last 3 yrs, "less than 2 so undetectable". All  I can say is "shit", pardon the language.

Worse than this is the fact that Dr. B's words obviously went clean over my head, because when he asked me if I was happy to stick to my 3 monthly appointments, I inexplicably said YES and did not give it another thought until waking at 3 a.m. this morning and panicking that I ought have demanded daily  appointments as my right,,,in fact hourly ones or even minute by minute. 

No seriously, if my favourite consultant says 3 months then I will share his optimism.......gladly:-)

There, it's said!


  1. When my mom was going through treatment she stopped even asking the numbers and just let the doctors decide when she should come back.

  2. When FL's number started rising (cue jokes about "my number's up!") the consultant told us that she sometimes saw people with scores in the thousands, so not to worry just yet. If they don't want to see you for another 3 months, I would suggest you celebrate and try not to think about it. 3 is a very very small number. Long may it stay that way!