Last night and today must be the worst days of this whole thing so far for me. I just keep crying with anger, my head feels like it is going to explode.
Well as I mentioned in my first post Mike was due to see the consultant on 26th Feb, but after having his x-rays the hospital sent an appointment for 17th Feb. which we attended thinking they knew best. We met a very nice lady (I actually mean girl, which just goes to show how old I'm feeling) who asked us why we were attending her clinic, to which we replied we had no idea as the appointment had been sent and we hadn't thought to query it. She had a look at Mike's x-rays and pointed out the pitting on the skull (looked like tiny miners had taken their pickaxes to it), the no longer square vertebrae (her words not ours, she did correct herself and say oblong) and the dark patches starting to appear on other bones. She told us it was stage 2 igG kappa myeloma (we were feeling left out as everyone else seems to know such things) and said she would like to start treatment straight away, but wasn't allowed to as:
1)Mike had to be discussed in some sort of meeting.
2) His consultant is currently in India (has been for nearly 3 weeks!)
We had no choice it seemed other than to say ok and we'd be back on the 26th.
I'm not sure why I did it, but as we were leaving I thought I'd check that the appointment still stood. NO it had been cancelled. NO there wasn't any appointments at that clinic available. In fact we still haven't been given an appointment. The receptionist promised she would sort something out and call us, we are still waiting. It is as if no-one cares. The support staff (that's what they all seem to be now) act as if an appointment in a month is good enough, they don't seem to understand what it is that Mike has got. So just how urgent is it that Mike starts on his treatment with stage 2? I'll keep you all posted when I have more news.
P.S. We have eventually managed to get his original appointment back, just as well really as we were planning to arrive with sandwiches and a flask and sit there all day if we had to.
12 hours ago